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Advocacy Organizations
Action DD (www.actiondd.org)
American Association of People with Disabilities (www.aapd-dc.org)
American With Disabilities Act Technical Assistance (www.adata.org)
Children's Defense Fund (www.childrensdefense.org)
Community Employment Alliance (www.communityemploymentalliance.org)
Consortium for Citizens with Disabilities (www.c-c-d.org)
Disability Rights Washington http://www.disabilityrightswa.org
Disabled Peoples' International (www.dpi.org)
Down Syndrome Research Online Advocacy Group (www.dsoag.com)
Easter Seals (www.easterseals.org)
Family Voices (www.familyvoices.org)
March of Dimes -- Washington Chapter (www.marchofdimes.com/washington)
National Association of State Directors of Developmental Disabilities Services (www.nasddds.org/TeleconferenceSeries-Advocacy.shtml)
National Organization on Disability (www.nod.org)
Parent Pals.com (http://parentpals.com/gossamer/pages)
Partners in Policy (http://www.partnersinpolicymaking.com)
People First of Washington (http://www.peoplefirstofwashington.org/)
Spokane Parent Coalition (www.spokaneparentcoalition.org)
Tacoma Area Coalition of Individuals with Disabilities (www.tacid.org)
The National Association for the Dually Diagnosed (www.thenadd.org/)
Self Advocates Becoming Empowered (www.sabeusa.org)
Speaking For Ourselves (www.speaking.org)
TASH (www.tash.org)
The Arc of King County (www.arcofkingcounty.org)
The Arc of Snohomish County www.arcsno.org
The Arc of Washington State (www.arcwa.org)
The ArcLink (www.thearclink.org)
The Council For Disability Rights (http://disabilityrights.org)
Voice of the Retarded (www.vor.net)
Washington Coalition of Citizens With Disabilities (www.wccd.org)
Washington State Developmental Disabilities Council (www.ddc.wa.gov)
Aging & Developmental Disabilities
Aging & Disability Services Administration (www.adsa.dshs.wa.gov)
British Columbia Association for Community Living (http://www.bcacl.org/)
Center on Aging and Disabilities (www.cad.med.miami.edu)
Informative Fact Sheets for Older Adults and Family Caregivers (http://epa.gov/aging/resources/factsheets/index.htm)
National Down Syndrome Society (http://www.ndss.org/)
Resources on Aging with Intellectual/Developmental Disabilities (http://www.rrtcadd.org/Resource/Publications/Info.html)
Alcohol and Substance Abuse
Developmental Disabilities/Substance Abuse (www.mass.gov/mddc/documents/ddsablueprint.doc)
The Substance Abuse Resources & Disability Issues (SARDI) Program (www.med.wright.edu/citar/sardi/index.html)
National Association on Alcohol, Drugs and Disability Inc. (www.naadd.org )
National Clearinghouse for Alcohol and Drug Information (http://health.org)
Arts and Disability
National Arts and Disability Center (http://nadc.ucla.edu/)
National Institute of Art & Disabilities (www.niadart.org)
Sprout Film Festival (www.gosprout.org/film)
VSA Arts (www.vsarts.org)
Asperger's Syndrome
A.S.P.E.N. (www.aspennj.org)
Asperger's Disorder (www.aspergers.com)
Families of Adults Afflicted with Asperger's Syndrome (FAAAS) (www.faaas.org)
KidsHealth for Parents: Asperger's Syndrome (www.kidshealth.org/parent/medical/brain/asperger.html)
Yale Developmental Disabilities Clinic (http://info.med.yale.edu/chldstdy/autism/aspergers.html)
Assistive Technology
Family Center on Technology and Disability (www.fctd.info)
Washington Assistive Technology Alliance (http://watap.org/)
Washington Assistive Technology Foundation (www.watf.org)
Autism
Autism Distance Education Network (www.albany.edu/psy/autism/autism.html)
Autism Guidebook for WA State (http://www.doh.wa.gov/cfh/autism/guidebook/default.htm)
Autism National Committee (www.autcom.org)
Autism Network International (http://ani.autistics.org)
Autism Outreach Project (www.esd189.org/autism)
Autism - PDD Resources Network (Washington) (www.autism-pdd.net/LINKS/washingt.htm)
Autism Research Foundation (www.ladders.org)
Autism Research Institute (www.autism.com)
Autism Society of America (www.autism-society.org)
Autism Society of Tacoma/Pierce County (www.homestead.com/autism_society_tacoma)
Autism Society of Washington (www.autismsocietyofwa.org)
Autism Speaks (http://www.autismspeaks.org/index2.php?intro=1)
Autistics.org (www.autistics.org)
Autism Now (National Autism Resource & Information Center) http://www.autismnow.org
Center for the Study of Autism (www.autism.org)
FEAT (Families for Early Autism Treatment) (www.feat.org)
Geneva Centre for Autism (www.autism.net)
MAAP Services for Autism and Asperger Syndrome (www.maapservices.org)
Online Asperger Syndrome Information and Support (www.aspergersyndrome.org)
TEACCH (Treatment and Education of Autistic and Related Communication (www.teacch.com)
The Mind Institute, UC Davis (www.ucdmc.ucdavis.edu/mindinstitute)
University of Miami Center for Autism and Related Disabilities (http://www.umcard.org/)
University of Sunderland Autism Research Unit (http://www.espa-research.org.uk/)
University of Washington Autism Center (www.depts.washington.edu/uwautism)
WA State Dept. of Health – Autism Projects (http://www.doh.wa.gov/cfh/mch/Autism/Autism.htm)
Blind/Visually Impaired
Community Services for the Blind and Partially Sighted (www.csbps.com)
National Information Clearinghouse on Children Who are Deaf-Blind (www.tr.wou.edu/dblink)
Washington State Dept. of Services for the Blind (www.dsb.wa.gov)
Brain Injury
Brain Injury Association of Washington (www.biawa.org)
Brain Injury Association, Inc. (www.biausa.org)
University of Washington School of Medicine, Dept. of Rehabilitation Medicine (http://depts.washington.edu/rehab)
Cerebral Palsy
American Academy for Cerebral Palsy and Developmental Medicine (www.aacpdm.org)
Cerebral Palsy Connection (www.cpconnection.com)
March of Dimes (www.marchofdimes.com/professionals/681_1208.asp)
National Institute of Neurological Disorders and Stroke (www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm)
United Cerebral Palsy (www.ucp.org)
Children
Brave Kids.org (www.bravekids.org)
Child Development Institute (www.childdevelopmentinfo.com/learning/learning_disabilities.shtml)
ComeUnity.com (www.comeunity.com/disability/cerebral_palsy)
Connect for Kids (http://sparkaction.org/)
Department of Early Learning (www.del.wa.gov/)
NICHCY (National Information Center for children and Youth with Disabilities) (www.nichcy.org)
Deaf and Hard of Hearing
Deaf Linx (http://www.deaflinx.com/)
Disability Studies
Canadian Centre on Disability Studies (http://www.disabilitystudies.ca)
Center for Disabilities and Development (http://www.uihealthcare.org/cdd/)
Center on Human Development and Disability (http://depts.washington.edu/chdd)
Center on Human Policy (http://thechp.syr.edu)
Disability History http://www.disabilityhistorywiki.org
Human Services Research Institute (http://www.hsri.org/index.asp)
Smithsonian National Museum of American History (Disability Rights Movement) (www.americanhistory.si.edu/disabilityrights/welcome.html)
Down Syndrome
Down Syndrome Educational Trust (www.downsed.org)
Down Syndrome Health Issues (www.ds-health.com)
National Down Syndrome Society (www.ndss.org)
National Association for Down Syndrome (www.nads.org)
The Canadian Down Syndrome Society (www.cdss.ca)
Early Intervention
Infant Toddler Early Prevention Program ( http://del.wa.gov/ESIT/)
National Early Childhood Transition Center (www.ihdi.uky.edu/nectc)
Employment
Best Buddies International (www.bestbuddies.org)
Gladnet (www.gladnet.org)
JAN (Job Accommodation Network) (janweb.icdi.wvu.edu)
National Collaborative on Workforce and Disability (http://www.ncwd-youth.info/)
U.S. Office of Disability Employment Policy (http://www.dol.gov/odep/)
Office of Employment Support Programs (www.ssa.gov/work)
Washington Initiative for Supported Employment (http://www.theinitiative.ws/)
Work Opportunities (www.workopportunities.org)
Your Ticket To Work (www.yourtickettowork.com)
Epilepsy
British Epilepsy Association (www.epilepsy.org.uk)
Center for Epilepsy (www.siumed.edu/neuro/epilepsy.html)
Epilepsy.com (www.epilepsy.com)
Epilepsy Foundation (www.efa.org)
National Institute of Neurological Disorders and Stroke (www.ninds.nih.gov/disorders/epilepsy/epilepsy.htm)
National Society for Epilepsy (www.epilepsynse.org.uk)
Family Support
Beach Center on Disability (www.beachcenter.org)
Family Caregiving 101 (www.familycaregiving101.com)
National Center for Family Support (www.familysupport-hsri.org)
Parents Connect (www.parentsconnect.org/linkster/linkster.php)
Parents Helping Parents (www.php.com)
The Fathers Network (www.fathersnetwork.org)
Fetal Alcohol Syndrome
Fetal Alcohol Spectrum Disorders Center for Excellence (www.fasdcenter.samhsa.gov)
U. of Washington School of Medicine Fetal Alcohol and Drug Unit (http://depts.washington.edu/fadu)
Health Portals
Disability Resources.org (www.disabilityresources.org)
HealthFinder.gov (www.healthfinder.gov)
Health.gov (www.health.gov)
InteliHealth (www.intelihealth.com)
MayoClinic.com (www.mayohealth.org)
Medline Plus (http://medlineplus.gov)
Network of Care (http://www.networkofcare.org)
Healthcare
Adolescent Health Transition Project (www.depts.washington.edu/healthtr)
American Academy of Pediatrics (www.aap.org/default.htm)
American Psychological Association (www.apa.org/practice/pu/apr98/ssa.html)
Center on Human Development and Disability (www.depts.washington.edu/chdd)
Children's Hospital & Regional Medical Center (www.seattlechildrens.org)
Family Voices (www.familyvoices.org)
National Network of Libraries of Medicine (http://nnlm.gov)
SafetyNet.US (www.isafetynet.org)
Washington State Home Care Quality Authority (http://www.hca.wa.gov/)
Independent Living
Community Living Exchange (www.cshp.rutgers.edu)
Housing and Urban Development (www.hud.gov/groups/disabilities.cfm)
Independent Living (www.independentliving.org)
Independent Living Research Utilization at TIRR (www.ilru.org)
Inclusion
Circle of Inclusion (www.circleofinclusion.org)
Inclusion.com (www.inclusion.com)
Institute for Community Inclusion (www.communityinclusion.org)
Institute on Community Integration (http://ici.umn.edu)
Inclusion Research Network (www.inclusionresearch.org)
Kid Source Online (www.kidsource.com)
Legal
Council of Parent Attorneys and Advocates (www.copaa.net)
National Guardianship Association (www.guardianship.org)
Law, Health Policy & Disability Center (http://disability.law.uiowa.edu)
Washington Protection and Advocacy System (www.wpas-rights.org)
Wrightslaw (www.wrightslaw.com)
Media
Disability History Museum (www.disabilitymuseum.org)
Disability Studies Online Magazine (www.disabilitystudies.com)
Disability World (www.disabilityworld.org)
Enabled Online (www.enabledonline.com)
Exceptional Parent Magazine (http://www.eparent.com)
Family Village (www.familyvillage.wisc.edu/index.htmlx)
Mainstream (www.mainstream-mag.com)
On A Roll Radio (www.onarollradio.com)
Medical/Medication
Harvard Health Publications (www.health.harvard.edu)
MedlinePlus (www.medlineplus.gov)
Medscape (www.medscape.com)
Merck Manual (http://www.merckmanuals.com/home/index.html)
National Organization for Rare Disorders (http://www.rarediseases.org/)
National Institute of Neurological Disorders (http://www.nih.gov/about/almanac/organization/NINDS.htm)
Prescription Drug Info (www.prescriptiondrug-info.com)
Positive Behavior Support
Michigan Positive Behavior Support Network (www.bridges4kids.org/PBS/PBS.html)
University of Delaware Positive Behavior Support Project (www.udel.edu/cds/pbs)
Prader-Willi Syndrome
International Prader-Willi Syndrome Organization (www.ipwso.org)
Prader-Willi Syndrome Association (www.pwsausa.org)
Yale-New Haven Medical Center (http://info.med.yale.edu/chldstdy/wspws)
QUALITY
The Council on Quality and Leadership
Recreation
Accessible Recreational Travel (www.voaww.org/art)
Cerebral Palsy International Sports & Recreation Association (www.cpisra.org)
Easter Seals (www.easterseals.com)
Kids Camps (www.kidscamps.com/special_needs/developmt_disability.html)
National Center on Physical Activity and Disability (www.ncpad.org
Special Olympics (www.specialolympics.org)
Research
National Center for the Dissemination of Disability Research (www.ncddr.org)
Self-Determination
Individualized Funding Information Resources (http://members.shaw.ca/bsalisbury)
National Program Office on Self-determination (www.self-determination.org)
Neighbours Inc. (www.neighbours-inc.com)
Self Determination Synthesis Project (www.uncc.edu/sdsp/home.asp)
Speaking for Ourselves (www.speaking.org)
Special Education
All Kinds of Minds (www.allkindsofminds.org)
Council for Exceptional Children (www.cec.sped.org)
ERIC (Educational Resources Information Center) (http://ericec.org)
International Journal of Special Education (www.internationaljournalofspecialeducation.com)
New Horizons for Learning (www.newhorizons.org)
Office of Special Education Programs (www.ed.gov/about/offices/list/osers/osep/index.html)
Partners in Education (www.partnersinpolicymaking.com/education)
Wash. State Office of Superintendent of Public Instruction (www.k12.wa.us/specialed)
PACER Center (Parent Advocacy Coalition for Educational Rights) (www.pacer.org)
Washington PAVE (Parents Are Vital in Education) (www.washingtonpave.com)
Transportation
Wash. State Agency Council on Coordinated Transportation (www.wsdot.wa.gov/acct/default.htm)
U.S. Government
The Access Board (www.access-board.gov)
Centers for Medicare and Medicaid Services (http://www.cms.gov)
Centers for Disease Control and Prevention (www.cdc.gov/ncbddd/dd/default.htm)
DisabilityInfo (www.disabilityinfo.gov)
FirstGov - The official website for searching the US Government (http://firstgov.gov)
National Council on Disability (www.ncd.gov )
President's Committee on People with Intellectual Disabilities (www.acf.hhs.gov/programs/pcpid/index.html)
US Dept. of Health & Human Services (http://www.hhs.gov/)
US Dept. of Justice - Americans with Disabilities Act (www.usdoj.gov/crt/ada/adahom1.htm)
The White House – Disabilities Issues (http://www.whitehouse.gov/issues/disabilities)
Artwork reprinted by permission of Martha Perske from
PERSKE: PENCIL PORTRAITS 1971-1990 (Nashville: Abingdon Press, 1998). |