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Pencil illustration by Martha Perkse of a girl in a motorized wheelchair towing 5 children behind her.

 

Advocacy Organizations

American Association of People with Disabilities  (www.aapd-dc.org)
American With Disabilities Act Technical Assistance  (www.adata.org)
Children's Defense Fund  (www.childrensdefense.org)
Consortium for Citizens with Disabilities  (www.c-c-d.org)
Disabled Peoples' International  (www.dpi.org)
Down Syndrome Research Online Advocacy Group  (www.dsoag.com)
Easter Seals  (www.easterseals.org)
Family Voices  (www.familyvoices.org)
March of Dimes -- Washington Chapter  (www.marchofdimes.com/washington)
National Association of State Directors of Developmental Disabilities Services  (www.nasddds.org/TeleconferenceSeries-Advocacy.shtml)
National Organization on Disability  (www.nod.org)
Parent Pals.com  (http://parentpals.com/gossamer/pages)
Partners in Policy  (http://www.partnersinpolicymaking.com)
People First of Washington (http://www.peoplefirstofwashington.org/)
Spokane Parent Coalition  (www.spokaneparentcoalition.org)
Tacoma Area Coalition of Individuals with Disabilities  (www.tacid.org)
The National Association for the Dually Diagnosed  (www.thenadd.org/)
Self Advocates Becoming Empowered  (www.sabeusa.org)
Speaking For Ourselves  (www.speaking.org)
TASH  (www.tash.org)
The Arc of King County  (www.arcofkingcounty.org)
The Arc of Washington State  (www.arcwa.org)
The ArcLink  (www.thearclink.org)
The Council For Disability Rights  (http://disabilityrights.org)
Voice of the Retarded  (www.vor.net)
Washington Coalition of Citizens With Disabilities  (www.wccd.org)
Washington Protection and Advocacy System  (www.wpas-rights.org)
Washington State Developmental Disabilities Council (www.ddc.wa.gov)

Aging & Developmental Disabilities

Aging & Disability Services Administration  (www.aasa.dshs.wa.gov)
British Columbia Association for Community Living  (www.bcacl.org/home/index.cfm )
Center on Aging and Disabilities  (www.cad.med.miami.edu)
Informative Fact Sheets for Older Adults and Family Caregivers (http://epa.gov/aging/resources/factsheets/index.htm)
National Down Syndrome Society (http://www.ndss.org/)
Rehabilitation Research and Training Center on Aging With Developmental Disabilities  (www.uic.edu/orgs/rrtcamr)
Resources on Aging with Intellectual/Developmental Disabilities  (www.uic.edu/orgs/rrtcamr/pubslist.html)

Alcohol and Substance Abuse

Developmental Disabilities/Substance Abuse  (www.mass.gov/mddc/documents/ddsablueprint.doc)
The Substance Abuse Resources & Disability Issues (SARDI) Program  (www.med.wright.edu/citar/sardi/index.html)
National Association on Alcohol, Drugs and Disability Inc.  (www.naadd.org )
National Clearinghouse for Alcohol and Drug Information  (http://health.org)

Arts and Disability

National Arts and Disability Center (http://nadc.ucla.edu/)

National Institute of Art & Disabilities  (www.niadart.org)
Sprout Film Festival  (www.gosprout.org/film)
VSA Arts  (www.vsarts.org)

Asperger's Syndrome

A.S.P.E.N.  (www.aspennj.org)
Asperger's Disorder  (www.aspergers.com)
Families of Adults Afflicted with Asperger's Syndrome (FAAAS)  (www.faaas.org)
KidsHealth for Parents: Asperger's Syndrome  (www.kidshealth.org/parent/medical/brain/asperger.html)
Yale Developmental Disabilities Clinic  (http://info.med.yale.edu/chldstdy/autism/aspergers.html)

Assistive Technology

Alliance for Technology Access  (www.ataccess.org/default.html)
Family Center on Technology and Disability  (www.fctd.info)
Washington Assistive Technology Alliance  (www.wata.org)
Washington Assistive Technology Foundation  (www.watf.org)

Autism

Autism Distance Education Network  (www.albany.edu/psy/autism/autism.html)

Autism Guidebook for WA State (http://www.doh.wa.gov/cfh/mch/Autism/guidebook.htm)
Autism National Committee  (www.autcom.org)
Autism Network International  (http://ani.autistics.org)
Autism Outreach Project  (www.esd189.org/autism)
Autism - PDD Resources Network (Washington)  (www.autism-pdd.net/LINKS/washingt.htm)
Autism Research Foundation  (www.ladders.org)
Autism Research Institute  (www.autism.com)
Autism Society of America  (www.autism-society.org)
Autism Society of Tacoma/Pierce County  (www.homestead.com/autism_society_tacoma)
Autism Society of Washington  (www.autismsocietyofwa.org)
Autism Speaks (http://www.autismspeaks.org/index2.php?intro=1)
Autistics.org  (www.autistics.org)
Center for the Study of Autism  (www.autism.org)
FEAT (Families for Early Autism Treatment)  (www.feat.org)
Geneva Centre for Autism  (www.autism.net)
MAAP Services for Autism and Asperger Syndrome  (www.maapservices.org)
Online Asperger Syndrome Information and Support  (www.aspergersyndrome.org)
TEACCH (Treatment and Education of Autistic and Related Communication  (www.teacch.com)
The Mind Institute, UC Davis  (www.ucdmc.ucdavis.edu/mindinstitute)
University of Miami Center for Autism and Related Disabilities (http://www.umcard.org/)
University of Sunderland Autism Research Unit  (http://osiris.sunderland.ac.uk/autism)
University of Washington Autism Center  (www.depts.washington.edu/uwautism)
WA State Dept. of Health – Autism Projects (http://www.doh.wa.gov/cfh/mch/Autism/Autism.htm)


Blind/Visually Impaired

Community Services for the Blind and Partially Sighted  (www.csbps.com)
National Information Clearinghouse on Children Who are Deaf-Blind  (www.tr.wou.edu/dblink)
Washington State Dept. of Services for the Blind  (www.dsb.wa.gov)

Brain Injury

Brain Injury Association of Washington  (www.biawa.org)
Brain Injury Association, Inc.  (www.biausa.org)
University of Washington School of Medicine, Dept. of Rehabilitation Medicine  (http://depts.washington.edu/rehab)

Cerebral Palsy

American Academy for Cerebral Palsy and Developmental Medicine  (www.aacpdm.org)
Cerebral Palsy Connection  (www.cpconnection.com)
March of Dimes  (www.marchofdimes.com/professionals/681_1208.asp)
National Institute of Neurological Disorders and Stroke  (www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm)
United Cerebral Palsy  (www.ucp.org)

Children

Brave Kids.org  (www.bravekids.org)
Child Development Institute  (www.childdevelopmentinfo.com/learning/learning_disabilities.shtml)
ComeUnity.com  (www.comeunity.com/disability/cerebral_palsy)
Connect for Kids  (www.connectforkids.org)
Department of Early Learning (www.del.wa.gov/)

NICHCY (National Information Center for children and Youth with Disabilities)  (www.nichcy.org)

Disability Studies

Canadian Centre on Disability Studies  (http://www.disabilitystudies.ca)
Center for Disabilities and Development  (www.healthcare.uiowa.edu/cdd/index.asp)
Center on Human Development and Disability  (http://depts.washington.edu/chdd)
Center on Human Policy  (http://thechp.syr.edu)
Human Services Research Institute  (http://www.hsri.org/index.asp)
Smithsonian National Museum of American History (Disability Rights Movement)  (www.americanhistory.si.edu/disabilityrights/welcome.html)

Down Syndrome

Down Syndrome Educational Trust  (www.downsed.org)
Down Syndrome Information Network  (www.down-syndrome.net)
Down Syndrome Health Issues  (www.ds-health.com)
National Down Syndrome Society  (www.ndss.org)
National Association for Down Syndrome  (www.nads.org)
The Canadian Down Syndrome Society  (www.cdss.ca)

Early Intervention

Infant Toddler Early Prevention Program  ( www1.dshs.wa.gov/iteip)
National Early Childhood Transition Center  (www.ihdi.uky.edu/nectc)

Employment

Best Buddies International  (www.bestbuddies.org)
Gladnet  (www.gladnet.org)
JAN (Job Accommodation Network)  (janweb.icdi.wvu.edu)
National Collaborative on Workforce and Disability   (www.ncwd-youth.info/index.html)
U.S. Office of Disability Employment Policy  (www.dol.gov/odep/welcome.html)
Office of Employment Support Programs  (www.ssa.gov/work)
Washington Initiative for Supported Employment (www.theinitiative.ws/default.html)
Work Opportunities  (www.workopportunities.org)
Your Ticket To Work (www.yourtickettowork.com)

Epilepsy

British Epilepsy Association  (www.epilepsy.org.uk)
Center for Epilepsy   (www.siumed.edu/neuro/epilepsy.html)
Epilepsy.com  (www.epilepsy.com)
Epilepsy Foundation  (www.efa.org)
National Institute of Neurological Disorders and Stroke  (www.ninds.nih.gov/disorders/epilepsy/epilepsy.htm)
National Society for Epilepsy  (www.epilepsynse.org.uk)

Family Support

Beach Center on Disability  (www.beachcenter.org)
Disaster Preparedness for People with Disabilities  (www.prepare.org/disabilities/disabilities.htm)
Family Caregiving 101 (www.familycaregiving101.com)
National Center for Family Support  (www.familysupport-hsri.org)
Parents Connect  (www.parentsconnect.org/linkster/linkster.php)
Parents Helping Parents  (www.php.com)
The Fathers Network (www.fathersnetwork.org)

Fetal Alcohol Syndrome

FAS/FAE Legal Issues Resource Center (http://depts.washington.edu/fadu/legalissues)
Fetal Alcohol Spectrum Disorders Center for Excellence (www.fasdcenter.samhsa.gov)
U. of Washington School of Medicine Fetal Alcohol and Drug Unit (http://depts.washington.edu/fadu)

Health Portals

Disability Resources.org (www.disabilityresources.org)
HealthFinder.gov  (www.healthfinder.gov)
Health.gov  (www.health.gov)
InteliHealth  (www.intelihealth.com)
MayoClinic.com  (www.mayohealth.org)
Medline Plus  (http://medlineplus.gov)
Network of Care (http://www.networkofcare.org)
Seattle-King County Community Resources Online (www2.ci.seattle.wa.us/crisisclinic)

Healthcare

Adolescent Health Transition Project  (www.depts.washington.edu/healthtr)
American Academy of Pediatrics  (www.aap.org/default.htm)
American Indian Health Commission for Washington State (www.aihc-wa.org)
American Psychological Association  (www.apa.org/practice/pu/apr98/ssa.html)
Center on Human Development and Disability  (www.depts.washington.edu/chdd)
Children's Hospital & Regional Medical Center  (www.seattlechildrens.org)
Family Voices  (www.familyvoices.org)
National Network of Libraries of Medicine (http://nnlm.gov)
SafetyNet.US (www.isafetynet.org)
Washington State Home Care Quality Authority (http://www.hcqa.wa.gov/)

Independent Living

Community Living Exchange (www.cshp.rutgers.edu)
Housing and Urban Development (www.hud.gov/groups/disabilities.cfm)
Independent Living (www.independentliving.org)
Independent Living Research Utilization at TIRR (www.ilru.org)

Inclusion

Circle of Inclusion  (www.circleofinclusion.org)
Inclusion.com  (www.inclusion.com)
Institute for Community Inclusion  (www.communityinclusion.org)
Institute on Community Integration  (http://ici.umn.edu)
Inclusion Research Network  (www.inclusionresearch.org)
Kid Source Online  (www.kidsource.com)

Legal

Council of Parent Attorneys and Advocates  (www.copaa.net)
National Guardianship Association (www.guardianship.org)
Law, Health Policy & Disability Center  (http://disability.law.uiowa.edu)
Washington Protection and Advocacy System  (www.wpas-rights.org)
Wrightslaw  (www.wrightslaw.com)

Media

Disability History Museum  (www.disabilitymuseum.org)
Disability Studies Online Magazine  (www.disabilitystudies.com)
Disability World  (www.disabilityworld.org)
Enabled Online  (www.enabledonline.com)
Exceptional Parent Magazine  (http://www.eparent.com)
Family Village  (www.familyvillage.wisc.edu/index.htmlx)
Mainstream  (www.mainstream-mag.com)
On A Roll Radio  (www.onarollradio.com)

Medical/Medication

Harvard Health Publications  (www.health.harvard.edu)
MedlinePlus  (www.medlineplus.gov)
Medscape  (www.medscape.com)
Merck Manual  (www.merck.com/mrkshared/mmanual/home.jsp)
National Organization for Rare Disorders (http://www.rarediseases.org/)
National Institute of Neurological Disorders (http://www.nih.gov/about/almanac/organization/NINDS.htm)
Prescription Drug Info  (www.prescriptiondrug-info.com)

Positive Behavior Support

Michigan Positive Behavior Support Network  (www.bridges4kids.org/PBS/PBS.html)
University of Delaware Positive Behavior Support Project  (www.udel.edu/cds/pbs)

Prader-Willi Syndrome

International Prader-Willi Syndrome Organization  (www.ipwso.org)
Prader-Willi Syndrome Association  (www.pwsausa.org)
Yale-New Haven Medical Center  (http://info.med.yale.edu/chldstdy/wspws)

 

QUALITY

The Council on Quality and Leadership

 

Recreation

Accessible Recreational Travel  (www.voaww.org/art)
America's Athletes With Disabilities  (www.americasathletes.org)
Cerebral Palsy International Sports & Recreation Association  (www.cpisra.org)
Easter Seals  (www.easterseals.com)
Kids Camps  (www.kidscamps.com/special_needs/developmt_disability.html)
National Center on Physical Activity and Disability  (www.ncpad.org
National Disability Sports Alliance  (www.ndsaonline.org)
Special Olympics  (www.specialolympics.org)

Research

National Center for the Dissemination of Disability Research  (www.ncddr.org)

Self-Determination

Individualized Funding Information Resources  (http://members.shaw.ca/bsalisbury)
National Program Office on Self-determination  (www.self-determination.org)
Neighbours Inc.  (www.neighbours-inc.com)
Self Determination Synthesis Project  (www.uncc.edu/sdsp/home.asp)
Speaking for Ourselves  (www.speaking.org)

Special Education

All Kinds of Minds  (www.allkindsofminds.org)
Council for Exceptional Children  (www.cec.sped.org/ab/index.html)
ERIC (Educational Resources Information Center)  (http://ericec.org)
International Journal of Special Education  (www.internationaljournalofspecialeducation.com)
New Horizons for Learning  (www.newhorizons.org)
Office of Special Education Programs  (www.ed.gov/about/offices/list/osers/osep/index.html)
Partners in Education  (www.partnersinpolicymaking.com/education)
Wash. State Office of Superintendent of Public Instruction  (www.k12.wa.us/specialed)
PACER Center (Parent Advocacy Coalition for Educational Rights)  (www.pacer.org)
Washington PAVE (Parents Are Vital in Education)  (www.washingtonpave.com)

Transportation

Wash. State Agency Council on Coordinated Transportation  (www.wsdot.wa.gov/acct/default.htm)

U.S. Government

The Access Board  (www.access-board.gov)
Center for Medicare and Medicaid Services  (http://cms.hhs.gov)
DisabilityInfo  (www.disabilityinfo.gov)
FirstGov - The official website for searching the US Government  (http://firstgov.gov)
National Center on Birth defects and Developmental Disabilities  (www.cdc.gov/ncbddd/dd/default.htm)
National Council on Disability  (www.ncd.gov )
President's Committee on People with Intellectual Disabilities  (www.acf.hhs.gov/programs/pcpid/index.html)
US Dept. of Health & Human Services (www.os.dhhs.gov)
US Dept. of Justice - Americans with Disabilities Act  (www.usdoj.gov/crt/ada/adahom1.htm)


Artwork reprinted by permission of Martha Perske from PERSKE: PENCIL PORTRAITS 1971-1990 (Nashville: Abingdon Press, 1998).

Last updated: August 17, 2009 | Privacy Notice

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